Well here we are again, or rather here we continue to be? I’m not really sure which is the appropriate way of stating what’s currently occuring. Anyway, let me explain!
I’m sure I’ve said already – I’m off work… Again, continuing from the end of February. I believe I’m now half way into week 3. I had a discussion with a doctor yesterday who has signed me off work until the 16th April, when I start my treatment and will be having a week off for treatment and then 2 to 3 weeks off for recovery. They have said that if I start to feel better in the next 3 weeks then I can go back but to bare in mind that with something like MS there is no indefinite time scale on how long a relapse lasts. I’ve been on the steroids and I can now see (thank goodness) but I’m still getting spats of virtigo and dizziness and really shouldn’t be driving, which is the only way for me to get to work from where I live.
I guess what worries me, more than anything, is that I actually have a medical driving license that has to be assessed every 3 years (yay for having MS) and if I’m knowingly having a relapse and get in a car accident I would be in soooo much trouble so it just isn’t worth the risk at all.
I’ve filled my time in a mixture of ways, I’ve done a lot of baking.
Made these little bad boys, my Mum took me to the shop and I stocked up on gluten free flour and an array of other cooking ingredients and just spent an afternoon baking. I’m seriously trying to take eating gluten and lactose free more seriously at the moment, I really do feel even that alone has helped so I can’t really complain.
Side note for anyone interested, I found these in Sainsbury’s yesterday – they are delightful.
I definitely advise anyone that hasn’t tried them to do so! How yummy.
I suppose I don’t really know what I’m going to spend the rest of my time doing, trying to keep things interesting so that I don’t go stir crazy but I’m not sure how well I’m doing on that front at the moment.
I’m starting to get extremely nervous about starting Lemtrada in 3 weeks but I am just hoping that it helps me settle down, symptoms wise. It’s so hard at the minute when I’ve had 3 relapses in 7 months, I never know if I’m coming or going but I’m just trying to remain positive. Surely that’s the best way! Surely I’m like an advocate of full blown positive thinking by this point?
Anyway, enough of my ramblings, I hope you all have an outstanding week and hopefully I’ll have something mildly interesting to report back soon!
- It isn’t your fault you are off sick
- 3 weeks will fly by, keep breathing
- Just keep your chin up